In this episode of the Extra Lucky Podcast, hosts Taryn and Jess sit with Heather Sachs and Stephanie Smith Lee from the National Down Syndrome Congress (NDSC) to discuss both their personal journeys and the critical advocacy work they are involved in. The conversation highlights the significance of policy changes, the challenges faced by families in the Down Syndrome community, and the current political landscape affecting disability rights. The guests share insights on the Individuals with Disabilities Education Act (IDEA), the need for federal oversight in education, and the broader implications of advocacy for all individuals with disabilities. In this conversation, the speakers discuss the critical roles of Medicaid in supporting individuals with disabilities, the implications of proposed work requirements, and the importance of advocacy in protecting these essential services. They emphasize the need for community support and personal well-being amidst the challenges of navigating healthcare policies and legislative actions.

You can stay up to date on all the latest going on in disability policy by following @ndscongress and by signing up for their advocacy alerts here. 

Learn more about Taryn, Jess & the Extra Lucky Community on Instagram @extraluckymoms, @tarynlagonigro and @jessquarello

The Extra Lucky Podcast is produced by Andie Amit of Sprouting Productions.